Willing Hearts, Helpful Hands
Memory cafés are another way people with memory loss and their loved one are coming together for a light meal or snack, enjoy some entertainment, make new friendships, and support one another. At a memory café, people can relax and just be themselves, knowing that no one judges them. At a memory café everyone there is going through almost the same things that you go through every day. A memory café has no real agenda or purpose except to enjoy each other’s company and help you and your care partner stay connected – the focus is on having fun and being together.
Cafés are open to people who are involved with the care and support of the family member with Alzheimer’s disease and other dementias. The Caring for Caregivers Café is offered at no cost. It is supported by a grant from the New York State Department of Health. Each café is different. We offer cafés on a variety of days and times to fit your schedule.
If you would like to join a come to a Café please contact us at 516-586-1507 or join our mailing to receive café registration notices. You can also email us WHHH@parkerinstitute.org via email, or click here.
Opportunities to Participate in Clinical Research Study
While Alzheimer’s disease can be devastating to patients, families, and their caregivers, clinical trials are looking at new ways to fight this disease and are great opportunities to participate and make a difference.
Hope Through Research
The Rethink-ALZ trial is now open to qualifying participants. The trials last for 52 weeks. If you enroll into this trial, you will receive either the oral study drug or placebo twice a day. A placebo looks like the study drug but has no impact on the person taking it. There is no cost to the patient to participate in the Rethink-ALZ trial or for any of the study-related procedures. No hospitalization is required. If you or a loved one are interested in participating in one of these studies, the following criteria must be met:
- Be ages 50 to 87 years old.
- Be diagnosed with, or have a suspected clinical diagnosis of, Alzheimer’s disease.
- Have a gradual change in memory for six months or more.
- Have a family member or loved one who can be available as a study partner during the entire study.
- Be fully vaccinated for COVID-19 or have had a previous COVID-19 infection.
Other criteria will apply.
Paving a Better Future
Agitation associated with Alzheimer’s dementia can be difficult to manage and can be very challenging for patients and their loved ones. The ASPECTTM clinical research study is evaluating an investigational drug for agitation associated with Alzheimer’s dementia and participants are needed. Participants will not have to pay for the study drug (the investigational drug or placebo), study supplies, study visits, or study tests. Health insurance is not required. To be eligible, participants must:
- Be between the ages of 50 and 90.
- Have a diagnosis of probable Alzheimer’s dementia.
- Have moderate-to-severe agitation that interferes with their daily life.
- Have a reliable caregiver who is able to comply with all study procedures
.Other criteria will apply.