Willing Hearts, Helpful Hands
LONG ISLAND ALZHEIMER’S CAREGIVER SUPPORT INITIATIVE
Caring for a loved one with Alzheimer’s disease or another dementia can be very challenging and stressful. You don’t have to do it alone. We can help. The Willing Hearts, Helpful Hands Program provides free assistance to caregivers of individuals with Alzheimer’s disease and other dementias living in Nassau and Suffolk Counties. Our program reaches out to give family caregivers of a relative who may be diagnosed with Alzheimer’s disease or another dementia and provides a much needed break so they can continue to care for their relative at home.
- Caregiver and family consultations.
- Caregiver education and training programs.
- Respite scholarships for in-home assistance, adult day services or overnight care.
- Support groups.
- Volunteer caregiver companion.
- Memory cafes.
The program includes a free in-home consultation; family consultation; support groups; education and training programs on how to care for someone with Alzheimer’s disease; scholarships for temporary respite so you can get a break. Respite can include in-home respite, adult day service or overnights in a nursing home; access to volunteer companions; and joint enrichment opportunities.
Here are a few of the ways this initiative can help you and your loved one:
- Allows the senior to remain at home.
- Emotional support for you.
- Social activities for your and your loved one.
- Supports the family.
- Focuses on your needs while helping your loved one too.
- Coordinate care and services for your loved one.
- Reduces caregiver burn-out or illness.
We are excited to be offering this caregiver program because we know that the need for caregivers in our community and country exceeds the number of adequately trained caregivers. We also know that informal caregivers in New York State provide 1.1 billion hours of unpaid care with an estimated value of $14 billion and that many of you are at the breaking point and need support to carry on. Whether you are a friend or a family member, caring for an older adult can be a challenge. The Willing Hearts, Helpful Hands program is dedicated to easing the many burdens associated with being a caregiver of an older adult with Alzheimer’s disease or other dementia. Services are free and available to anyone caring for a loved one with Alzheimer’s disease and other dementias.
If you are a caregiver who could use some ‘helpful hands’ simply call our Caregiver Help Line at 516-586-1507 to learn more.
This initiative is supported by a grant from the New York State Department of Health, and by Parker Jewish Institute for Health Care and Rehabilitation.
Opportunities to Participate in Clinical Research Study
While Alzheimer’s disease can be devastating to patients, families, and their caregivers, clinical trials are looking at new ways to fight this disease and are great opportunities to participate and make a difference.
Hope Through Research
The Rethink-ALZ trial is now open to qualifying participants. The trials last for 52 weeks. If you enroll into this trial, you will receive either the oral study drug or placebo twice a day. A placebo looks like the study drug but has no impact on the person taking it. There is no cost to the patient to participate in the Rethink-ALZ trial or for any of the study-related procedures. No hospitalization is required. If you or a loved one are interested in participating in one of these studies, the following criteria must be met:
- Be ages 50 to 87 years old.
- Be diagnosed with, or have a suspected clinical diagnosis of, Alzheimer’s disease.
- Have a gradual change in memory for six months or more.
- Have a family member or loved one who can be available as a study partner during the entire study.
- Be fully vaccinated for COVID-19 or have had a previous COVID-19 infection.
Other criteria will apply.
Paving a Better Future
Agitation associated with Alzheimer’s dementia can be difficult to manage and can be very challenging for patients and their loved ones. The ASPECTTM clinical research study is evaluating an investigational drug for agitation associated with Alzheimer’s dementia and participants are needed. Participants will not have to pay for the study drug (the investigational drug or placebo), study supplies, study visits, or study tests. Health insurance is not required. To be eligible, participants must:
- Be between the ages of 50 and 90.
- Have a diagnosis of probable Alzheimer’s dementia.
- Have moderate-to-severe agitation that interferes with their daily life.
- Have a reliable caregiver who is able to comply with all study procedures
.Other criteria will apply.